TY - GEN
T1 - Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families
AU - Silva, Inês Santos
AU - Guerreiro, João
AU - Rosa, Marlene
AU - Campos, Joana
AU - Pascoal, Augusto Gil
AU - Pinto, Sofia
AU - Nicolau, Hugo
N1 - Publisher Copyright:
© 2020 ACM.
PY - 2020/4/21
Y1 - 2020/4/21
N2 - There are over 80 million stroke survivors globally, making it the main cause of long-term disability worldwide. Not only do the challenges associated with stroke affect the quality of life (QoL) of survivors, but also of their families. To explore these challenges and define design opportunities for technologies to improve the QoL of both stakeholders, we conducted semi-structured interviews with 10 survivors and one of their family members. We uncovered three major interlinked themes: strategies to cope with technological barriers, the (in)adequacy of assistive technologies, and limitations of the rehabilitation process. Findings highlight multiple design opportunities, including the need for meaningful patient-centered tools and methods to improve rehabilitation effectiveness, emotion-aware computing for family emotional support, and re-thinking the nature of assistive technologies to consider the perception of transitory stroke-related disabilities. We thus argue for a new class of dual-purpose technologies that fit survivors' abilities while promoting the regain of function.
AB - There are over 80 million stroke survivors globally, making it the main cause of long-term disability worldwide. Not only do the challenges associated with stroke affect the quality of life (QoL) of survivors, but also of their families. To explore these challenges and define design opportunities for technologies to improve the QoL of both stakeholders, we conducted semi-structured interviews with 10 survivors and one of their family members. We uncovered three major interlinked themes: strategies to cope with technological barriers, the (in)adequacy of assistive technologies, and limitations of the rehabilitation process. Findings highlight multiple design opportunities, including the need for meaningful patient-centered tools and methods to improve rehabilitation effectiveness, emotion-aware computing for family emotional support, and re-thinking the nature of assistive technologies to consider the perception of transitory stroke-related disabilities. We thus argue for a new class of dual-purpose technologies that fit survivors' abilities while promoting the regain of function.
KW - assistive technologies
KW - quality of life
KW - stroke rehabilitation
UR - http://www.scopus.com/inward/record.url?scp=85091315084&partnerID=8YFLogxK
U2 - 10.1145/3313831.3376239
DO - 10.1145/3313831.3376239
M3 - Conference contribution
AN - SCOPUS:85091315084
T3 - Conference on Human Factors in Computing Systems - Proceedings
BT - CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
PB - Association for Computing Machinery
T2 - 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020
Y2 - 25 April 2020 through 30 April 2020
ER -