Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families

Inês Santos Silva; João Guerreiro; Marlene Rosa; Joana Campos; Augusto Gil Pascoal; Sofia Pinto; Hugo Nicolau

doi:10.1145/3313831.3376239

Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families

Inês Santos Silva
, João Guerreiro
, Marlene Rosa
, Joana Campos
, Augusto Gil Pascoal
, Sofia Pinto
, Hugo Nicolau

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

5 Citations (Scopus)

Abstract

There are over 80 million stroke survivors globally, making it the main cause of long-term disability worldwide. Not only do the challenges associated with stroke affect the quality of life (QoL) of survivors, but also of their families. To explore these challenges and define design opportunities for technologies to improve the QoL of both stakeholders, we conducted semi-structured interviews with 10 survivors and one of their family members. We uncovered three major interlinked themes: strategies to cope with technological barriers, the (in)adequacy of assistive technologies, and limitations of the rehabilitation process. Findings highlight multiple design opportunities, including the need for meaningful patient-centered tools and methods to improve rehabilitation effectiveness, emotion-aware computing for family emotional support, and re-thinking the nature of assistive technologies to consider the perception of transitory stroke-related disabilities. We thus argue for a new class of dual-purpose technologies that fit survivors' abilities while promoting the regain of function.

Original language	English
Title of host publication	CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
Publisher	Association for Computing Machinery
ISBN (Electronic)	9781450367080
DOIs	https://doi.org/10.1145/3313831.3376239
Publication status	Published - 21 Apr 2020
Externally published	Yes
Event	2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020 - Honolulu, United States Duration: 25 Apr 2020 → 30 Apr 2020

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings

Conference

Conference	2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020
Country/Territory	United States
City	Honolulu
Period	25/04/20 → 30/04/20

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

assistive technologies
quality of life
stroke rehabilitation

Access to Document

10.1145/3313831.3376239

Cite this

Silva, I. S., Guerreiro, J., Rosa, M., Campos, J., Pascoal, A. G., Pinto, S., & Nicolau, H. (2020). Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families. In CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems Article 3376239 (Conference on Human Factors in Computing Systems - Proceedings). Association for Computing Machinery. https://doi.org/10.1145/3313831.3376239

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title = "Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families",

abstract = "There are over 80 million stroke survivors globally, making it the main cause of long-term disability worldwide. Not only do the challenges associated with stroke affect the quality of life (QoL) of survivors, but also of their families. To explore these challenges and define design opportunities for technologies to improve the QoL of both stakeholders, we conducted semi-structured interviews with 10 survivors and one of their family members. We uncovered three major interlinked themes: strategies to cope with technological barriers, the (in)adequacy of assistive technologies, and limitations of the rehabilitation process. Findings highlight multiple design opportunities, including the need for meaningful patient-centered tools and methods to improve rehabilitation effectiveness, emotion-aware computing for family emotional support, and re-thinking the nature of assistive technologies to consider the perception of transitory stroke-related disabilities. We thus argue for a new class of dual-purpose technologies that fit survivors' abilities while promoting the regain of function.",

keywords = "assistive technologies, quality of life, stroke rehabilitation",

author = "Silva, \{In{\^e}s Santos\} and Jo{\~a}o Guerreiro and Marlene Rosa and Joana Campos and Pascoal, \{Augusto Gil\} and Sofia Pinto and Hugo Nicolau",

note = "Publisher Copyright: {\textcopyright} 2020 ACM.; 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020 ; Conference date: 25-04-2020 Through 30-04-2020",

year = "2020",

month = apr,

day = "21",

doi = "10.1145/3313831.3376239",

language = "English",

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Silva, IS, Guerreiro, J, Rosa, M, Campos, J, Pascoal, AG, Pinto, S & Nicolau, H 2020, Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families. in CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems., 3376239, Conference on Human Factors in Computing Systems - Proceedings, Association for Computing Machinery, 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020, Honolulu, United States, 25/04/20. https://doi.org/10.1145/3313831.3376239

Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families. / Silva, Inês Santos; Guerreiro, João; Rosa, Marlene et al.
CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, 2020. 3376239 (Conference on Human Factors in Computing Systems - Proceedings).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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T1 - Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families

AU - Silva, Inês Santos

AU - Guerreiro, João

AU - Rosa, Marlene

AU - Campos, Joana

AU - Pascoal, Augusto Gil

AU - Pinto, Sofia

AU - Nicolau, Hugo

PY - 2020/4/21

Y1 - 2020/4/21

N2 - There are over 80 million stroke survivors globally, making it the main cause of long-term disability worldwide. Not only do the challenges associated with stroke affect the quality of life (QoL) of survivors, but also of their families. To explore these challenges and define design opportunities for technologies to improve the QoL of both stakeholders, we conducted semi-structured interviews with 10 survivors and one of their family members. We uncovered three major interlinked themes: strategies to cope with technological barriers, the (in)adequacy of assistive technologies, and limitations of the rehabilitation process. Findings highlight multiple design opportunities, including the need for meaningful patient-centered tools and methods to improve rehabilitation effectiveness, emotion-aware computing for family emotional support, and re-thinking the nature of assistive technologies to consider the perception of transitory stroke-related disabilities. We thus argue for a new class of dual-purpose technologies that fit survivors' abilities while promoting the regain of function.

AB - There are over 80 million stroke survivors globally, making it the main cause of long-term disability worldwide. Not only do the challenges associated with stroke affect the quality of life (QoL) of survivors, but also of their families. To explore these challenges and define design opportunities for technologies to improve the QoL of both stakeholders, we conducted semi-structured interviews with 10 survivors and one of their family members. We uncovered three major interlinked themes: strategies to cope with technological barriers, the (in)adequacy of assistive technologies, and limitations of the rehabilitation process. Findings highlight multiple design opportunities, including the need for meaningful patient-centered tools and methods to improve rehabilitation effectiveness, emotion-aware computing for family emotional support, and re-thinking the nature of assistive technologies to consider the perception of transitory stroke-related disabilities. We thus argue for a new class of dual-purpose technologies that fit survivors' abilities while promoting the regain of function.

KW - assistive technologies

KW - quality of life

KW - stroke rehabilitation

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T3 - Conference on Human Factors in Computing Systems - Proceedings

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Silva IS, Guerreiro J, Rosa M, Campos J, Pascoal AG, Pinto S et al. Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families. In CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery. 2020. 3376239. (Conference on Human Factors in Computing Systems - Proceedings). doi: 10.1145/3313831.3376239

Investigating the Opportunities for Technologies to Enhance QoL with Stroke Survivors and their Families

Abstract

Publication series

Conference

UN SDGs

Keywords

Access to Document

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